I first would like to apologize to my readers: I am so very sorry that I have not posted anything new since October!! Now with that said I could give you a dozen reasons as to why I did not post anything. It's not that I ran out of things to say, our story is no where near done!! It's just hard for me to express a lot of these situations when they are still happening. Blogging is still new to me and I have so much to share. I blog because I want families like ours to know their rights and I DO NOT want them to have to suffer the long drawn out process we have/had to!!
Quite simply I stopped because I got afraid that I wasn't expressing it right. You see for the past 7 years I've pretty much kept our daily lives knowledgeable to our family and close friends(oh and the home care nurses). After seven years I decided to blog about it ALL. After seven years I decided to join this online community of parents with special needs kiddos. After starting this blog I started to explore the world of other special needs families. I have found some amazing blogs written beautifully by some damn strong mamas!! Oh then I found some more blogs about raising special needs kiddos written by some very courageous dads! Everyone I find I am grateful for. I guess in reading all these blogs I started to feel inadequate, silly I know, but true. I read all these blogs and saw all their followers. Glancing at my followers, I started to fear my blog wasn't worth reading. I stopped blogging...
During the holidays while catching up with friends and family I'd give a summary on all things Ethan for the year and a 'what's next' update. Then they'd ask about how everything was going with the school.... they started asking me about my blog. MY BLOG?!?! They'd then ask when I would post again!! I then realized just because they don't have a little avatar under my followers it doesn't mean they aren't reading it or that they don't care about it or me. I think that whatever or however I am doing this blog it might not be perfect but it's working...it's getting the story out there. I think I just got over my 'blogging block'.
So with this stated I will try to post a new blog picking up where I'd stopped in my retelling of our story....I just have a few phone calls to make to make sure I have one side to it accurate. Also I would like to share that I have recently gone back to school....so I can only blog after I study:)
I blog to advocate for my son and others like him. My family has been unable to escape an awful experience. One we never want to relive, but are learning so much from. We are fighting a School District; getting them to provide special medical needs for my son. My mission; Limit how many times a School District can move a child and the care guidelines that public schools follow for medically needy kiddos needs to be regulated. Thanks for your interest in our daily life and my mission.
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